Parkinson’s Awareness Month — with Benjamin Stecher

How did you handle your diagnosis?

How did you start understanding more about Parkinson’s?

In your opinion, what should we be doing to advance research?

You’ve visited a lot of research programs related to Parkinson’s. Is there anything that really stood out for you?

In your collaborations with such research centers, what roles do you play?

People are often hesitant to participate in research studies because they are uncertain about it’s benefits and the potential harm it might cause them. What is your approach to participating in research?

What would you say to someone who is thinking about participating in a trial but is unsure?

These are complex topics, and explaining them to those who don’t have a background in medicine or research can be difficult. Do you think that miscommunication often causes mistrust about research?

Do you recommend any sources that people can use to educate themselves about Parkinson’s?

Let’s move to you. What sort of symptoms do you face?

What sort of lifestyle changes did you make to adapt with your symptoms?

The mental aspect of Parkinson’s is often overlooked. How do you maintain your mental health?

How has your social circle evolved with Parkinson’s? Does it help manage Parkinson’s, at least mentally and emotionally?

In your book “Brain Fables”, you advocate a more radical approach to address Parkinson’s. One of your primary suggestions is collaborating with researchers outside of neurology to try and address Parkinson’s. Could you explain that to us?

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Lifespark Technologies

Lifespark Technologies

Lifespark Technologies provides personalised healthcare for those with Parkinson's Disease.